MENTORS OF CHANGE

The FASD Mentors of Change program is created and run by individuals with Fetal Alcohol Spectrum Disorder (FASD), with 96% of the staff also on the spectrum. It was developed by people who wanted to ensure their voices were heard and their experiences valued, providing a space where they can take the lead in shaping their own support systems. The program features a buddy system that encourages advocacy, collaboration, and the creation of workshops and initiatives. Together, participants build a community rooted in respect, understanding, and inclusion, empowering individuals with FASD to take pride in their accomplishments and take charge of their future.

Mission

We encourage and support those with lived and living experience of FASD and their families to take a central role in their own lives. Using the ‘nothing about us without us’ approach, we recognize them as experts in their own experiences and promote respect, dignity, and inclusion.

Vision

We envision a world where those with lived and living experience of FASD and their families are supported, encouraged, and treated with respect and dignity. Through education, teaching, and raising awareness, we foster stronger communities and greater understanding.

The FASD Mentors of Change program is dedicated to building programs, workshops, peer groups, and sessions that enhance support for individuals with Fetal Alcohol Spectrum Disorder (FASD). We work closely with government officials, social services, school divisions, and coalitions to foster a better understanding of how to support those in their care. Central to our approach is the “Nothing About Us Without Us” principle, which ensures that individuals with FASD are at the forefront of decision-making. At the end of the day, we know what we need and how best to address the challenges we face.

According to estimates, approximately 4% of Canadians are living with FASD . This highlights the importance of tailored support and understanding within our communities and care systems.