‘You’re weird, you’re different and nobody wants to be your friend’: the loneliness of FASD

Check this out! CBC Radio sat down with Myles Himmelreich and Manitoba’s own Dr. Ana Hanlon-Dearman, medical director at the Manitoba FASD centre and network in Winnipeg to discuss FASD and to hear what it’s like to live with FASD.  You can listen to the whole radio segment of read the article here

 

Photo submitted to CBC Radio by Myles Himmelreich.

CBC Radio ·

Stepping Out on Saturdays Selkirk has openings!

Stepping Out on Saturdays Manitoba in Selkirk has openings for children 6-11 years of age with an FASD diagnosis. Check out the poster here for more information on registering your child for the respite day camp that provides children with a full day of fun activities focused on social skills, self-regulation strategies and motor skills.

New Manitoba court for people with FASD could be game changer: CBC News

New Manitoba court for people with FASD to open at end of February

“Lawyers and judges say a new court set to open in Manitoba specifically for people with fetal alcohol spectrum disorder could be a game changer.” The court, which is expected to open at the end of February and sit 1 day a week, is an extension of the original youth program.

Check out the full article at: https://www.cbc.ca/news/canada/manitoba/fasd-court-manitoba-1.5004051

 

Lunch with Bev: Community Making a Difference – South Parkland FASD Coalition spotlight

On Friday September 7, the South Parkland FASD Coalition hosted “Lunch with Bev”. About 20 people attended this brown bag luncheon (participants brought their own lunch).  Participants included a mix of professional and community members.  It was held in a comfortable, informal space at the Dauphin Friendship Centre.  Twyla Gilroy, the coalition chair, welcomed all who attended, and acknowledged the traditional lands where we were meeting.

Bev, a local elder, shared her story about her life experiences, consisting of the good times and the not so good times. Her personal story of tragedy and triumph, trauma and loving relationships, addictions and sobriety, and shame and dignity touched the hearts of everyone in the room.  Her strength, resiliency, and positive outlook on life moved us all.

Fetal Alcohol Spectrum Disorder (FASD) can result from exposure to alcohol during pregnancy. Whether or not alcohol exposure leads to FASD depends on a complex set of biological and social factors that interact in different ways for each person.  Biological factors can include a woman’s sensitivity to alcohol, metabolism, and size.  Social factors like chronic stress, violence, trauma, or poverty can increase the chances that a baby might be born with FASD.

Bev’s story challenged us to rethink how we think about FASD and the mothers of children with FASD. As she shared her story, we were able to see the context of the social factors of her life in a new light, and achieved greater understanding of the complexity of FASD.

Bev responded to questions and comments from those in the room. A common theme of discussion was a greater understanding of and respect for women who use alcohol and other substances during pregnancy.  We all left the lunch encouraged to continue to support women with whom we interact.

Everyone left with a cookie (or two) provided by coalition members. Each cookie had a sticker with the Looking After Each Other logo and website address.  Several lucky attendees also went home with door prizes.

The South Parkland FASD Coalition was happy to host this successful event of bringing awareness and education about Fetal Alcohol Spectrum Disorder to the south Parkland. We envision that events such as this will promote dignity related to FASD.

 

New Resource

New Directors has introduced a new FREE resource to help families and caregivers have conversations with kids. You can check it out on the Resource page of the Coalition website, http://www.fasdcoalition.ca/resources/resource-listing/