A Momentous FASD Awareness Day 2019 in Manitoba!

Let’s celebrate Manitoba! The Province of Manitoba has officially proclaimed September 9th to be known throughout Manitoba as Fetal Alcohol Spectrum Disorder Awareness Day!

Come join us on Monday, September 9th, 2019 from 9:00 – 11:00 am at the Legislature to mark this recognition.

PLEASE NOTE THERE HAS BEEN A CHANGE IN LOCATION TO THE ROTUNDA INSIDE THE LEGISLATIVE BUILDING (to be mindful of our unpredictable weather).

‘You’re not alone’: New program in North West Territories helps foster kids with FASD prepare for life on their own

Kate Kyle · CBC News · Posted: Jul 16, 2019

What a success story! Applause for The Foster Family Coalition of the NWT for creating the pilot 4Y Program after identifying a gap in services, specifically for young people with FASD who are transitioning out of foster care! Check out this great article by CBC News on how pairing youth with a service navigator can help them to learn life skills and build support networks that focuses on their strengths and aid them in achieving their goals! Building relationships, taking a team approach and providing support are some of the best known strategies to assisting individuals with FASD to be successful!

Click here for the full article.

Toward a Standard Definition of Fetal Alcohol Spectrum Disorder in Canada – CanFASD

The CanFASD Research Network has released a new policy action paper called Toward a Standard Definition of Fetal Alcohol Spectrum Disorder in Canada. This policy action paper describes the approach taken to create a standard definition of FASD in Canada, as well as our proposed definition for use in FASD policy and practice finishing with the recommendation that this definition be used by governments and policy makers across Canada to promote standardization and consistent language when discussing FASD.

"Language is a reflection of how people in a society see one another, which can impact perceptions and consequently how people think... Changing the phrasing in the way we speak and write about Fetal Alcohol Spectrum Disorder (FASD), as well as focusing upon a person's abilities, rather than theirdisabilities, can assist us in changing perspectives both inside and outside of the FASD community."
"This [proposed] definition emphasizes the whole-body implications of FASD and highlights that each individual with FASD is unique, with their own individual strengths and challenges."

You can check out the full report here.

 

Making Change in the Lives of Individuals with FASD

What really matters? Getting the lay of the land for individuals with FASD.

The Adult Leadership Committee (ALC) of FASD Change Makers wants to know what life is like for teens and adults who are 16 years and older who have diagnosed FASD, or who think they have FASD but do not have an official diagnosis.  This is an important topic that no one has surveyed yet.  We plan to change that and need your help to get this survey to as many people who have FASD think they do as we can.

As there is little known about what life is like for adults with FASD, and very little to no comparison information of what we are asking about is available for the general population, we are also asking for a large number of people 16 years and older, who do NOT have FASD and do NOT think they do, to also complete this survey.  We want them to serve as a kind of control group so we can try to compare things if we can.  

 

We need your help to do this.

You can participate in this survey in either capacity no matter where you live in the world.  Just click on the correct link in this email for you:

FASD (diagnosed or undiagnosed FASD)  https://ubc.ca1.qualtrics.com/jfe/form/SV_22WRob1OlCjTxSR

or

Control https://ubc.ca1.qualtrics.com/jfe/form/SV_bfJGMWvxoocMgjX

A letter will give you more details before you start the survey.  There is a lot of interest in what individuals with FASD have to say.  We hope to present this information at the 9th International Conference on Adolescents and Adults with FASD which will be held in Vancouver, BC, Canada in April of 2020.

 

We must have your finished survey back by September 13, 2019

If you have any questions please email us at: FASDChangemakers@gmail.com

Didn’t get a chance to attend the UBC FASD Conference? Watch Online!

The University of British Columbia has posted PDFs and video recordings from the 2019 FASD Conference in Vancouver. You can check out presenters who focus on prevention, intervention and more. Click here to head to their website.